Saturday, December 3, 2011


He put a pen to paper, and this is what he wrote.

Dear Han,
We are apartment in i.
We are clearly @ fairly but and are looking higher performer each higher week



rather poetic, isn't it?

Compare it to the poetry he wrote for me back in 1998 (posted in Nov 2010).
His decline with words echoes the artist's decline with painting (see the amazing self-portraits by
William Utermohlen, posted in Jan 2010, at the beginning of this blog)

Tuesday, November 29, 2011

another great essay, titled A Powerful Act of Love

by Susan Hall. Susan is a high school English teacher. She lives with her husband and two children in Pentwater, Michigan, where she and her family enjoy cheering on her son’s Special Olympics basketball team, the Area 24 Tornadoes.

(I included this because the song Red River Valley is the one that Grandpa shared with us most often while he lived with us, and it reminds us most strongly of him. I love how it is emphasized in this essay!)


It showed up last Christmas, a gift borne by eager grandparents. Long and unwieldy, we managed it through the front door, grandparents on the porch, I inside, angling it this way and that.

Since the unwrapped present’s box boldly declared its contents, I dispensed with the usual wait-until-Christmas rule. We pried apart the box’s sharp staples, and there it was: the mother of all electronic keyboards.

My son loves music. Diagnosed at age one with a rare seizure disorder that stalled his cognitive development, he is fond of rhythm, buttons, and lights. And so we have known some keyboards over the years. They’ve been presents from all over the place: eBay, garage sales, a local grocery store. Our basement is a bone yard of broken keyboards, some still working erratically if pounded in the right spots.

The new present was spectacular. A song bank stores one hundred familiar tunes. By pressing a sequence of buttons, my son can change the instruments and tones in startling ways. We’ve heard everything from “Ode to Joy” with a disco beat to a haunting church organ rendition of “Happy Birthday.”

I love the keyboard not because my son loves it, not because it is a great educational toy, but because it safely occupies him for long stretches. As long as I hear the stops and starts of the music blaring from my son’s room, I have time to fold towels, grade a paper, throw a roast in the oven, or read about my son’s disability. I have time to fantasize about mounting some public and terrific response to my son’s affliction. The keyboards have been great babysitters.

One day I wandered into my son’s room. “Beautiful Dreamer” was playing. I sat down on the floor to cut my toenails. My son leaned back and flashed me a beatific smile. I smiled back: the music was nice, the piano just right.

A few days later my son, insistent, led me to the bathroom connected to his bedroom. He climbed up on the toilet and reached into a basket perched on the windowsill. Then he handed me a pair of nail clippers. Instantly I understood. And so I sat for a while on his bedroom floor, just listening with him. “Four-four,” I requested, naming the number for my favorite tune, “Red River Valley.”

He surprised me by accommodating my request, and we shared some smiles. As we listened, the sunlight came streaming through the blinds. It was brilliant and perfect and infused with that certain and unnamable something else.

The other day, curious, I looked up the lyrics to “Red River Valley.”

Come and sit by my side if you love me,
Do not hasten to bid me adieu.

And so I have come to believe in sitting and listening with someone as a powerful act, a loving action full with possibility. This I have learned from my son and his special music, a belief forged only after I was able to take a moment and listen.


Great essay from ThisIbelieve.org

by Korinthia Klein:

My grandfather died more than twenty-five years ago. I was fifteen. He was kind, strong, fair, and very funny. When I was a young musician, he was my biggest fan. My grandpa used to applaud when I tuned, and I would roll my eyes and shrug off his enthusiasm as too biased. I played my violin for him when he visited, and he loved everything, but each time he had one request. “Could you play ‘Amazing Grace’?” he asked, full of hope and with a twinkle in his eye, because he knew my answer was always, “I don’t know that one!” We went through this routine at every major holiday, and I always figured I’d have time to learn it for him later.

About the time I entered high school and had switched to viola and started guitar, Grandpa got cancer. The last time I saw him alive was Thanksgiving weekend in 1985. My mom warned us when we turned onto the familiar street that Grandpa didn’t look the same anymore and that we should prepare ourselves. For a moment I didn’t recognize him. He looked so small among all the white sheets, and I had never thought of my grandpa as small in any sense. We had all gathered in Ohio for the holiday, and I’m sure we all knew we were there to say good-bye. I can see now that Grandpa held on long enough to see us each one more time. I remember how we ate in the dining room and laughed and talked while Grandpa rested in his hospital bed set up in the den. I wonder if it was sad for him to be alone with our voices and laughter. Knowing Grandpa, he was probably content.

The next morning I found my moment alone with him. I pulled out my guitar, tuned to his appreciative gaze, and finally played for him “Amazing Grace.” I had worked on it for weeks, knowing it never mattered if I actually played it well and choosing not to believe as I played that it was my last concert for my biggest fan. The cancer had stolen his smile, but I saw joy in his eyes. He held my hand afterward, and I knew I had done something important.

I argued with people all through college about my music major. I was told by strangers that music wouldn’t make me any money and it wasn’t useful like being a doctor. But I know firsthand that with music I was able to give my grandpa something at a point when no one else could. Food didn’t taste good, doctors couldn’t help, and his body had betrayed him and left him helpless. But for a few minutes listening to me with my guitar, he seemed to find beauty and love and escape. At its best music is the highest expression of humanity’s better nature, and I’m privileged to contribute to such a profound tradition.

So, this I believe: Love matters. Music matters. And in our best moments they are one and the same.

Wednesday, November 2, 2011

Always a love of nature


This is a lovely haiku he wrote for my birthday back in 1998..... I found it when going through his boxes of photos and letters. Very precious!

Tuesday, October 25, 2011

Grandpa has a new home




The 'candy bar' episode worried us (see post in late September). What would he bite into next? This was an indicator that he needed more supervision, at a level we are not able to give him and still keep our jobs.

So, we have moved him into a 'memory care' facility, called Claire Bridge Brookdale Senior Living. It is just down the road from us, about 5 minutes away. It has the three things he loves best: 1. Good opportunities for socializing, 2. An outdoor area where he can take walks outside yet still be safe, and 3. Generous meals and 'round-the-clock snacking.

We set up his room with the pictures that Tess painted of Ed fishing at Porcupine Lake in Idaho, and of Grandpa Burt leading a little blond boy (probably Dick) towards the house from the woods, and the photo of him catching a big bass fish near the Denton slough. These photos and pictures are meaningful to him; he loves to point to them and tell stories of them. That's where his mind is at - a place in time about 60 years ago. All the other photos that I've had up in his room these last 5 years - Mom, us, his other children and their families- he has no recognition of them any more. So, I chose what makes him most engaged.

He adjusted easily to his new home. He is very comfortable in his room and accepting of being there. He seems to have quickly forgotten that he was ever anywhere else!

It was very strange for us, though, in the first few days. I kept expecting to see him sitting in his regular room, to fix him another meal, to tuck him in to bed at night. It's been a long five years for us, constantly taking care of him. The first thing we did, once he was safe and sound, was to sleep for days.

We took him in on Thursday - it was kinda like dropping a child off at summer camp! We went back to visit him on Saturday. As we walked in, I saw him standing in the window of someone else's room, which was facing the parking lot, and he was gesturing wildly to us. I thought 'oh no, he's trying to say "Get me outta here!"' So I anxiously went in to find him. He recognized me and said he'd been watching us perform on stage and was waving at us. Oh! well, that's good, then! So, he wasn't feeling bad about where he was - in fact, he was having some pretty entertaining thought mismatchings.

I like the way the facility is designed. There is a large central plaza where chairs are gathered around round tables and the residents are lead in stories or memory games - good listening and social time. A small aviary in this plaza has chirping parakeets. Off the main hallways are smaller lounges with a workshop where the men can go if they want to tinker with gadgets (like latches, or wrenches and bolts) and a nursery where the women, who lived their lives as caretakers, can find a baby doll to dress up and wrap in a blanket and carry around with them.

The facility smells good and the rooms are kept very warm. Just the cozy warmth that Grandpa would love. His window looks out on a green walking path and a birdhouse. (in the photo)

The staff are compassionate. When I visit, I check through his dresser drawers to see what he has picked up in his 'shopping' excursions. I return whatever he has picked up during his wanderings to the front desk, in case anything belongs to another resident. They are very calm about this; apparently many of the residents go 'shopping' in other people's rooms and in the public areas. That's why I'm glad that I spent so much time putting his name in all his clothes- so they have a chance of being returned if they walk away. Yesterday, we found a baby doll, blanket, and baby clothes stashed away in his nightstand. Well, good for you, Grandpa! Gotta keep the baby safe.

You can write to him at:

Richard Ralph, C-5
Claire Bridge Silver Lake
2015 Lake Heights Dr.
Everett, WA 98208

and you can call the facility and ask to speak to him:
425-337-6336

Below are two videos of him describing his paintings and photos. You can see that communication has become rather challenging for him - word finding, clarity, ideas. He thinks he is communicating - he doesn't know that it's not getting across.









Sunday, October 23, 2011

Great essay on Parenting a Parent

http://www.menshealth.com/best-life/parenting-parent


This is written by Mel Brook's son and was published in 2007. Shortly afterwards, Mel felt well enough to work again, producing the Broadway Musical 'Young Frankenstein'. It premiered in Seattle before going on to New York. I saw it on its second night, and Mel Brooks was in the audience. It was good to see him working again. The show is very funny!

Saturday, October 22, 2011

Hanging up his clean shirts

I did a pile of laundry for him, and asked him to put it away. That pile of clothes on his bed turned out to be a daunting project, so I gave them to him one at a time. He focused on buttoning every single little teeny tiny button on the shirts! Kinda poignant, how much concentration it took.

In the middle of my filming his work, Isaac came in the room with a hug attack.